Pediatricians see many children who are complex, have unusual or rare conditions, or who are what is sometimes called “medically frail”. This may be because they get sick easily, need extra support, require technology or many special supports to live.
Consider looking at this website for support:
https://rarediseasefoundation.org
Ted Talk:
https://www.ted.com/talks/andrew_solomon_love_no_matter_what?language=en